Purpose 

FamilyHub is an online community for parents and family carers of people with a learning disability.

It is managed by Mencap, but first and foremost it's a place for parents to connect. 

FamilyHub is a place for parents and family carers to share experiences, triumphs and challenges, and to offer support and guidance to others. 

We know that parents are experts by experience, and we’re here simply to facilitate this community. We want FamilyHub to be a safe and welcoming place where family members can talk freely and share. 

FamilyHub isn't meant for support workers or other professionals.  

FamilyHub house rules

We want FamilyHub to be a safe, supportive community so we've made a few house rules. Each time you use FamilyHub you're agreeing to stick to them.

Minimum age 

You must be at least 16 years old to join FamilyHub. Accounts of members found to be under 16 will be closed. This is for the safety and protection of children. If you are under 16 and need support, you may find it helpful to visit Sibs or Carers Trust.  

Moderation 

FamilyHub is moderated during the working week, Monday to Friday. Out of hours support is not available. For urgent or out-of-hours help please contact Samaritans: 116 123. 

Moderators might edit or remove posts that are inappropriate. More details about inappropriate content are given below. 

Mencap's team 

Some of Mencap’s staff are part of FamilyHub such as our policy experts or advisors. They will offer their advice where appropriate. We aim to reply as soon as possible when you have a question but it can take up to 5 days.  

Our Community Manager will also post from time to time, usually to get some conversations started or to welcome new members to the community. 

Mencap is not responsible for the content posted by members of FamilyHub and any views expressed in FamilyHub are purely the views of the members and as such don't constitute professional recommendations or advice or the opinions of Mencap. 

Inappropriate content 

Content on FamilyHub will be deemed offensive, inappropriate or irrelevant and in breach of the house rules if it is: 

  • harassing, defamatory, abusive, intimidating, discriminatory, pornographic, obscene or threatening 

  • against the law - including the Data Protection Act 

  • contains personal information or details which would enable someone to identify a person without their permission 

  • deemed that the user is pretending to be someone other than themselves 

  • infringes copyright 

  • medical endorsement or advice 

  • a misrepresent or damage the reputation of Mencap 

  • a complaint that should be directed elsewhere and through different channels 

  • a message posted for personal financial gain (i.e. it’s advertising) 

  • off topic and not relevant to the discussion or subject matter 

This list is not exhaustive. Posting content that may put you or us at risk of prosecution, such as defamatory posts or content that breach someone else’s intellectual property rights is against our House Rules and Terms and Conditions.  

Please do not 'name and shame' people or organisations, this can leave both you and Mencap open to prosecution if your comments could be interpreted as libellous. Please don’t use FamilyHub for anything unlawful, misleading or malicious. 

Inappropriate content will be removed from FamilyHub, though we will do our best to let you know why in advance. 

Posting images 

Feel free to post images but please make sure you don't post photos without the person's permission or of children under 18 without parental consent.  

Reporting 

If you come across a post that breaks our house rules, please don't reply. People who post abusive or offensive messages are often looking for attention.  

If you feel that something is offensive or distasteful you can use the flag button to highlight this to the community managers. This is done anonymously and will remain so. The community managers will review the reported content and take action accordingly. Clicking the flag button does not guarantee the content will be removed and also does not guarantee it will be hidden immediately. 

You can also send an email to community@mencap.org.uk with a link to the post and why you think it is inappropriate. 

We will carefully consider every moderation decision and in some cases we may ask members to be tolerant of other people's views and ways of expressing themselves.  

The community managers reserve the right to take steps or implement measures that we think will benefit the community as a whole.  

Safety and wellbeing 

If you are worried about the safety and wellbeing of a member of the community, or someone they care for, please get in touch with us at community@mencap.org.uk 

We take all mentions of intention to commit suicide, assisted suicide or self-harm very seriously. We will get in touch directly with the person to offer guidance. Suicidal posts will be removed from FamilyHub.  

If you, or another user, needs urgent help, you can get in touch with Samaritans 24/7 by calling 116 123. 

Medical advice 

Mencap’s community team is not able to offer medical advice. 

We know it can be tempting to offer advice when you want to help someone, but offering medical information or advice can be really dangerous, especially if you don't know someone's medical history. Please don't offer medical advice on FamilyHub; if someone needs help it's better to suggest that they talk to their GP. 

Your data 

By joining FamilyHub you’re agreeing to us storing the details you provide. It also means you allow us to email you about the community with news that we hope you'll find useful - and you can unsubscribe from these updates at any time. When you sign up there is also the option to receive wider email marketing news from Mencap. You can go to your profile on the website to further manage your preferences.  

Your data will be securely controlled and all processing will be undertaken in accordance with and as permitted by the requirements of data protection law. 

Please also see our Mencap's privacy policy and Mencap's website terms and conditions

What you share 

Remember that FamilyHub is a public community, and anyone can see what you write. We therefore recommend you choose a username that does not identify you personally. For more information about staying online, visit Stay Safe Online.

To help promote FamilyHub to as many parents as possible, we will sometimes use what's written on our community to help us market our work and promote what we do. We'll always do this anonymously, removing any names or identifiable details from what we use. 

Updates to our terms and conditions 

We have the right to update and change our House Rules and Terms and Conditions at any time. 

Get in touch 

If you have any questions about these Terms and Conditions, or anything on the site at all, contact us and we’ll do all we can to help: community@mencap.org.uk  

Join FamilyHub

Connect with others going through similar experiences to you.

Whether you are a sibling of someone with a learning disability, a parent who's just had a diagnosis, or a parent of an adult with a learning disability with wisdom to share, you’ll find a warm welcome in the FamilyHub.

Go to FamilyHub

FamilyHub house rules

We want FamilyHub to be a safe, supportive community so we've made a few house rules
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